The Guide to Thriving Beyond the Crises in your Life: 4 Effective Steps

It's not just tea that revives you

As a spouse, parent and caregiver I have been on hyper-alert for 5 years.

Why?

It’s because my family is very good at having serious medical conditions with unpronounceable names.

My husband was first diagnosed with trigeminal neuralgia in 2008. And if trigeminal neuralgia wasn’t difficult enough to say and remember, in 2009, our oldest son Benjy won the prize. 

He was diagnosed with a heart condition called Wolff Parkinson White with supraventricular tachycardia. (Try saying that a few times, very quickly.) This condition is sometimes connected with sudden death. Benjy's version of this syndrome meant that he needed two heart surgeries, between January and April  2010. 

My husband had invasive brain surgery ( MVD) for his trigeminal neuralgia in 2011. You can see why I might live on high alert!

Living on hyper-alert puts you in survival mode. You are either waiting for a symptom to show itself, in the midst of an attack, or recovering from the fallout:

Why The Duchess of Cambridge (Kate) Would Find Treatment Diaries Comforting.

How many of you keep or have in the past, kept a private written record of your thoughts and feelings?

How many of you would feel comfortable publishing your emotions and having hundreds or even thousands of people read them?

During my teens I often expressed my teenage angst in a diary that is so well hidden I have no idea where it is now!

So given my preference for privacy you might be wondering how I came to be writing a blog, especially one that expresses a myriad of emotions.( I often wonder this myself!)

A Patient's Top Ten Tips For Surviving A Long Hospital Stay

Many of you will remember that my husband Jonny was rushed to hospital this time last year. He had been suffering a resurgence of an extremely painful facial nerve condition called **trigeminal neuralgia that had spiraled out of control. His medications had stopped working.

The internist couldn't find new meds to control the pain.

The neurologist was out of ideas for treating it. 

And  Carol the Physician's Assistant to one of the finest neurosurgeons in the world at Johns' Hopkins Trigeminal Neuralgia center was at her wits end. 

No Job Description- Caregiving Part 1: Search and Rescue

Harry Potter World, August 2011

Almost one year ago exactly, Jonny began a new battle with Trigeminal Neuralgia*(TN). One year on and 2 surgeries later, Jonny's pain is very much  under control.  From this positive vantage point I have now begun to reflect back on how we coped during  those frightening unpredictable first days and weeks. In particular I have been ruminating on how I learned the ropes of my new  job as caregiver, a job that like Jonny’s illness was thrust unceremoniously and without notice on     me.