Showing posts with label
Ideas for supporting patients.
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Showing posts with label
Ideas for supporting patients.
Show all posts
Many of you will remember that my husband Jonny was rushed to hospital this time last year. He had been suffering a resurgence of an extremely painful facial nerve condition called **trigeminal neuralgia that had spiraled out of control. His medications had stopped working.
The internist couldn't find new meds to control the pain.
The neurologist was out of ideas for treating it.
And Carol the Physician's Assistant to one of the finest neurosurgeons in the world at Johns' Hopkins Trigeminal Neuralgia center was at her wits end.
***This is the third post in a series about living with and recovering from serious illness. The first post Recovery-The New Normal appeared two weeks ago. The second post Recovery Part 2- Poem In Your Pocket appeared last week.***
I really thought I knew what recovery looked like. I started to write about Jonny's recovery from MVD brain surgery, the moment he emerged from the ICU back in early November 2011, until starting this blog in February. I measured it in terms of Celebrating the Small and Big Milestones. I described it as Navigating a Labyrinth, I talked about Two Steps Forward One Step Back. ( Please see Brainstorming, for all these posts and an explanation of MVD.) I thought I had it down.
